Alicia’s Temple Street story began when she was two years old. She was diagnosed with Beckwith Wiedemann Syndrome, which is an overgrowth condition that affected her tongue. Mum Laura says that it was a big relief to finally have an answer after a lot of worry when her beautiful little girl was born.
A few months later, they were referred to the Craniofacial Team here in Temple Street, which Laura says was both a nervous and daunting experience. “We met Mr. Murray and the rest of the team – he was so calming, as I was a bag of nerves. He understood the syndrom and I really felt at ease.”
Laura says that she didn’t sleep the night before Alicia’s surgery – it was the first time she had been admitted to hospital. She worried about whether it would work and if her little girl might feel pain afterwards. But she says, their experience of Temple Street was amazing.
“It was essential for Alicia to have this surgery and her stay wasn’t going to be long. The nurses on the morning went above and beyond for me. I cried and cried even more bringing her down. I have to be thankful to Kerry who looked after me at Theatre. Everyone was so caring and understanding. The waiting is probably the worst – she is my one and only and it was definitely frightening.”
Following the surgery, Alicia was brought to ICU to be monitored. Laura says that their experience in Intensive Care particularly stands out in her mind. “It is here I got to see the absolute courage and care that each nurse had for their patients. Machines beeping, nurses running – it was definitely an experience that I hope I never find myself in with Alicia, but I know if it did happen that she would be in the best care possible.”
Thankfully Alicia’s surgery is now behind her and Laura says that she can’t wait to show Mr. Murray how well she has progressed. “Alicia has a long road ahead – three monthly scans until the age of ten, speech therapy and possibly surgery on her knee. But I definitely wouldn’t have any hesitation in attending Temple Street again if she needed surgery. The nurses and doctors there do not get enough credit, and without the Craniofacial Team, my daughter’s speech wouldn’t have improved. I’ll always be grateful for the care she received.”